Our Stories

Ezzy

Ezzy's Story

28th November 2019 / Wheelchairs

Ezzy is five years old, and she lives with her family in Bristol. 

She was born with cerebral palsy, which affects all four of her limbs, making them stiff and contracted. To get around, Ezzy uses a walking frame and wears orthotics daily. She is also on the autistic spectrum and has a sensory processing disorder, a condition where the brain has trouble receiving and responding to information that comes in through the senses.

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Daniel

Daniel's story

26th November 2019 / Wheelchairs

My name is Daniel and I am 14 years old.

I was born with a condition called Duchenne Muscular Dystrophy, a degenerative condition where the muscles waste away over time. It means that whilst others gain more physical skills as they get older, I go the opposite way.

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Levi and Lucas

Levi and Lucas' story

22nd November 2019 / Grants

Levi and Lucas are 13-year-old twins. They were adopted in 2008 when they were two years old. Both Levi and Lucas are on the autistic spectrum and they also have complex epilepsy along with learning difficulties. The boys are prone to focal and tonic seizures which start in a limited area on one side of the brain and then spread to both sides. This means they are severely affected by all their conditions.

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Maddie

Maddie's story

13th November 2019 / Grants

I'm Maddie, and I'm 15 years old. I was born with a condition called Spina Bifida, which is caused by a gap or split in the spine. Essentially, the spinal cord does not form properly and may be damaged. My Spina bifida affects my lower limbs which means I experience a loss of sensation in the lower part of my body. This requires me to use a wheelchair.

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Karl with his dog

Karl's Story

13th November 2019 / Grants

Five year old Karl has cerebral palsy. Due to his spasticity, his muscles often go into painful cramps and he frequently experiences seizures. This means he cannot sit, walk or move unaided, or play on his own, which he desperately wants to do. Most of all, he cannot be independent.

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