Our Stories

Lillian

Liddy's story

7th January 2020 / Grants

Lillian (known as Liddy) is 14 years old and lives with her family in Cornwall. She has a very rare genetic condition called Kleefstra syndrome which is characterised by an intellectual disability. Liddy also fatigues very quickly due to hypertonia and hypermobility syndrome. This means she has always needed to use a wheelchair to take part in most activities and, in the past, relied on her family to push her around.

Read this story
Ezzy

Ezzy's Story

28th November 2019 / Wheelchairs

Ezzy is five years old and she lives with her family in Bristol. She was born with cerebral palsy, which affects all four of her limbs, making them stiff and contracted. To get around, Ezzy uses a walking frame and wears orthotics daily. She is also on the autistic spectrum and has a sensory processing disorder, a condition where the brain has trouble receiving and responding to information that comes in through the senses.

Read this story
Daniel

Daniel's story

26th November 2019 / Wheelchairs

My name is Daniel and I am 14 years old. I was born with a condition called Duchenne Muscular Dystrophy, a degenerative condition where the muscles waste away over time. It means that whilst others gain more physical skills as they get older, I go the opposite way.

Read this story
Levi and Lucas

Levi and Lucas' story

22nd November 2019 / Grants

Levi and Lucas are 13-year-old twins. They were adopted in 2008 when they were two years old. Both Levi and Lucas are on the autistic spectrum and they also have complex epilepsy along with learning difficulties. The boys are prone to focal and tonic seizures which start in a limited area on one side of the brain and then spread to both sides. This means they are severely affected by all their conditions.

Read this story
Maddie

Maddie's story

13th November 2019 / Grants

I'm Maddie, and I'm 15 years old. I was born with a condition called Spina Bifida, which is caused by a gap or split in the spine. Essentially, the spinal cord does not form properly and may be damaged. My Spina bifida affects my lower limbs which means I experience a loss of sensation in the lower part of my body. This requires me to use a wheelchair.

Read this story