“I don’t think anyone really understands the life of a sibling with a brother or sister with a disability”
“Hi, I’m Alex. I live with my mum, dad, and brother Dan.
“I bicker a lot with Dan but we are very close and sometimes play together on the PlayStation. We are brothers after all!
“I’ve always helped around the house and I’ve always helped Dan, even if it’s only getting him a drink. I fetch things for him because he can’t do it himself. We get a lot of time to play together but I often prefer to be alone. When we do play together we have a lot of fun.
“I still get to play with my friends when I’m doing nothing else and I’ve never missed a sleepover or a party because I had to look after Dan. It does feel nice to get out of the house once in a while though.
“I don’t think anyone really understands the life of a sibling with a brother or sister with a disability. If they had a sibling that suffers as Dan does then they might feel like me – worn out at the end of the day after school and then helping to look after Dan. They wouldn’t last one day because they haven’t had years of experience like me.
“If I was in charge, I would give more money to pay for proper carers so that my mum, dad and me could have time to relax and not stress and worry about Dan every second.
“As for my future, well, I would like to be an RAF engineer when I grow up as I feel I have what it takes and it’s a skilled job that needs lots of qualifications. I feel I could achieve them. If that doesn’t work out though, I would like to be a video game designer. But I will always be proud of my brother.”