Billy's new Variety-funded epilepsy monitor gives his parents peace of mind at night

Four-year-old Billy, who lives in Dorset, loves going to the park, He also enjoys playing with his five sisters and brothers, as well as pretending to be Batman or Spiderman. Billy has high-risk epilepsy. Despite being on anti-epileptic medication, his seizures and vomiting have continued, requiring many hospital stays and sometimes emergency resuscitations. Billy's parents approached Variety for help with funding epilepsy monitoring equipment to give them peace of mind at night. They specifically needed an alarm radio system that can detect the vomiting or seizures in their early stages, giving them critical time to intervene and get appropriate help if necessary, hopefully lowering Billy's risk of sudden unexpected death in epilepsy (SUDEP). Thankfully, Variety was able to fund a monitoring radio device for Billy. 

 

Billy with his epilepsy radio alarm monitor

Billy's new machine has sophisticated sensors (placed beneath his mattress) that can tell the difference between his normal sleep activity and seizure-induced movement, as well as detect changes in his breathing patterns. 

Mum Charlotte tells us: "We are so grateful to Variety for Billy's equipment, which has been a life saver. Billy has been through so much for his age and has had quite a few hospital stays, so it’s top equipment that he needs. This machine has made our lives so much easier. It monitors his breathing, so we parents can sleep at night knowing we will be alerted if he is in danger. Billy is thrilled too, as he now feels so much safer. Here's a huge thank you to Variety from one pleased little four-year-old!."